A brain tumour diagnosis can be a shocking and upsetting experience, both for the affected person and their family and friends. On top of the difficult news, there may be practical matters to think about such as financial support, employment, and childcare, at a time when you feel the least like dealing with them.
To help people cope with these trying circumstances, the Brainstrust charity has launched a special support toolkit called the Brain Box. It contains resources that are designed to help you feel more in control of your situation, that you can turn to when you wake up feeling overwhelmed at 3am in the morning.
The boxes are free for anyone who has been diagnosed with a brain tumour or who is caring for a brain tumour patient, and they can be ordered directly from the Brainstrust website. There is the opportunity to provide details such as the age of the patient and the tumour type and grade, so that you can be sent the most relevant information.
For parents of children who have been diagnosed with a brain tumour, there is a Little Brainstrust Brainbox. Many of the resources are available online and can be downloaded.
What is contained in the Brain Box?
The Brain Box contains a number of different guides, and you are able to request which ones you would like to be included in your order. There is a general guide that explains the care you can expect to receive from your medical team, and a guide specifically designed for patients who are facing radiotherapy.
There are further guides covering issues such as how to cope with fatigue; how to have a difficult conversation; how to cope with behaviour and personality change; and a guide to understanding and managing the end-of-life care pathway.
If you would like further information about brain tumour treatment, please contact Mr Andrew McAvoy of Amethyst Radiotherapy.