Rare Brain Conditions: Why Cavernoma Awareness Month Matters

During June, Cavernoma Awareness Month has been shining a spotlight on a brain condition that is rare. However, it’s estimated that one in every 600 people in the UK has a cavernoma that doesn’t cause symptoms, and every year about 160 people are diagnosed with symptomatic cavernoma.

Many people have never heard of the condition until they, or someone close to them, is diagnosed with it. This can make the shock of a serious health condition even more difficult and distressing to deal with. In fact, awareness of the condition in the medical community was limited until the development of Magnetic Resonance Imaging (MRI) in the 1980s.

This means that the causes, symptoms and treatment pathways for cavernoma are only just beginning to be widely understood. Over the past four decades, patient groups and healthcare organisations have worked together to create a global knowledge sharing community, and advance research and care of this rare condition.

Understanding cavernomas

Cavernoma, also known as cerebral cavernous malformation (CCM), involves clusters of abnormal blood vessels in the brain or spinal cord. It’s not a tumour and is not cancerous, although it can grow bigger over time. One of the major risks of growing cavernomas is blood leakage (haemorrhage) from the weak malformed vessels.

Other serious symptoms of a cavernoma include seizures and neurological defects such as vision disturbances, dizziness, memory and concentration difficulties, and limb weakness. Patients may also experience frequent headaches. The type and severity of the symptoms depend on where the cavernoma is located, and if it is pressing on other parts of the brain.

The causes of cavernoma are not fully understood, but in about 20 per cent of cases it is a hereditary condition that can be caused by a genetic mutation. This most often results in multiple cavernomas forming. Non-hereditary cavernomas are more likely to occur singly, and appear to form by chance.

The challenges of living with a rare condition

Being diagnosed with a cavernoma can sometimes be a long and frustrating journey. Lack of awareness of the condition both among the public and clinicians and symptoms that mimic other conditions can mean that it’s often misdiagnosed. Even after a correct diagnosis, patients can feel isolated, and the treatment pathway can seem complex and daunting.

Coping with life-disrupting symptoms such as seizures, limb weakness and memory loss can be stressful, and patients may not know how to access support and advice. Because it’s a rare condition, GPs and even some neurological specialists may not have much experience of managing them.

Why Cavernoma Awareness Month matters

In common with many brain conditions, cavernoma has historically been under-researched and underfunded. There have only been a limited number of large-scale clinical studies and not a great deal of pharmaceutical investment. This means that the treatment options are currently limited and there are disparities in patient access to the best treatment.

Greater visibility of the condition through initiatives such as Cavernoma Awareness Month brings the potential for increased research funding, faster diagnosis times, more effective treatments, and stronger patient support networks.

Cavernoma treatment pathways

Not all cavernomas require direct treatment, but are actively monitored for signs of change with regular MRI scans. If the patient is experiencing seizures, these may be treated with epilepsy medication. Headaches can be managed with painkillers.

However, if the cavernoma is causing bleeds or pressing on an important area of the brain, then surgical removal may be necessary. Traditionally, open surgery has been used to remove cavernomas that are in an accessible area of the brain. However, this carries significant risks and can lead to further complications.

Stereotactic radiosurgery

Stereotactic radiosurgery (SRS) involves directing multiple beams of radiation at the cavernoma from different angles to destroy the damaged blood vessels. One of the most accurate and effective forms of SRS is Gamma Knife surgery. This may be considered as a treatment option when open surgery is deemed too risky.

One of the advantages of Gamma Knife treatment is that it can usually be delivered in a single session, and the patient can go home on the same day. It does not involve making any incisions, and no anaesthetic is required, so recovery times are minimal.

The future of cavernoma care

Currently, there is still a lot of uncertainty around how best to treat cavernomas, or what the long-term outlook is for people who opt not to treat them. More research is needed into how cavernomas are formed and more clinical trials are needed to investigate the best treatments. That’s why the June awareness raising campaign is so important.

If you or a loved one has been diagnosed with cavernoma, learn more about how Gamma Knife surgery at Amethyst can help.

Amethyst Teams Participate In Innovative NHS ConfedExpo 2025

Amethyst Radiotherapy were pleased to participate in the NHS ConfedExpo 2025 in Manchester on 11 and 12 June. The event is the biggest UK health and care conference, attracting over 5,000 professionals and partners from across the sector to share insights and discuss new innovations.

Two of the main topics on the agenda were “Digital, AI, data and technology” and “Collaboration and partnerships.” As leading providers of cancer care and public-private partnerships, Amethyst are committed to investing in cutting-edge technologies that improve outcomes, widen access and enable more personalised treatment plans.

Here’s a look at the new possibilities AI and digital technology and PPPs are opening up for Amethyst’s Gamma Knife centres in London and Sheffield.

What is Gamma Knife surgery?

Contrary to what the name suggests, Gamma Knife surgery does not involve making any incisions with a blade, as required for traditional open surgery. It’s a form of stereotactic radiosurgery (SRS) that uses focused beams of radiation to target and destroy tumour cells without damaging the surrounding healthy area of brain tissue.

The treatment is already considered to be one of the safest and most effective types of SRS, particularly for patients with small to medium sized brain tumours, arteriovenous malformations, and some forms of trigeminal neuralgia.

Gamma Knife is often used in cases of meningioma and acoustic neuroma, sometimes in conjunction with regular neurosurgery, or as an alternative if the patient is not a suitable candidate for open surgery. It is highly accurate, which minimises the risks of side effects and complications.

Now, the next era of Gamma Knife technology is evolving. It is highly compatible with AI and data driven innovations, and this is shaping the future of SRS treatments to be more precise, personalised and beneficial than ever before. This can make the treatment process even more streamlined and effective.

Earlier and more accurate diagnosis

The signs of a brain tumour on MRI scans can sometimes be misinterpreted by human radiologists. Research has shown that machine learning is able to distinguish between hundreds of different types of lesions and accurately detect very tiny or complex changes around tumour boundaries.

It is also faster than human analysis, and can even be used to predict the rate of tumour growth. This leads to earlier detection and better information for clinicians to plan the most appropriate treatments, which improves the likelihood of successful patient outcomes.

More precise tumour contouring

Gamma knife treatment requires an exact map of the brain structure and tumour boundaries. AI tools can be used to provide auto-contouring, which gives an extremely accurate and detailed annotation of the tumour boundaries. When done manually, this process is very time-consuming and subject to human error or variations in interpretation.

AI contouring methods are much quicker and potentially more accurate at mapping brain tumours, leading to more effective treatments with fewer side effects.

Calculating effective biological dose

Research is currently ongoing into the use of AI for optimising the biological effective dose of radiation and exposure times. Furthermore, AI can be integrated into image-guided therapy platforms to allow neurosurgeons to monitor the radiation delivery and tumour response in real-time, and make adjustments if necessary.

This will minimise the risk of side effects caused by damage to the surrounding brain tissue.

Predictive outcomes

AI tools are trained through exposure to vast amounts of patient data, and this helps clinicians to better predict how a patient might respond to a specific treatment. This means that patients benefit from more personalised and effective treatment plans.

The future of PPPs and brain tumour treatment

Demand for brain tumour treatments is set to increase in the future as the population ages and lives longer than previous generations. Age is one of the risk factors for brain cancer, so the healthcare sector can expect to see a corresponding rise in diagnosis.

There is also a growing awareness among the public and GPs of the signs and symptoms of brain tumours, leading to more referrals to specialist healthcare teams.

As the NHS is under continuing pressure with tight budgets, growing demand and staff shortages, public-private partnerships (PPPs) are set to play a key role in shaping the future of healthcare in the UK. Amethyst is positioning itself as a leading provider of PPPs throughout Europe.

As an internationally successful private cancer care provider, we already work closely with the NHS at our two radiotherapy centres of excellence in London and Sheffield. In the future, we intend to position Amethyst as the go-to choice for PPPs, expanding patient access to the innovative treatments and experienced and knowledgeable clinicians.

Cavernoma Awareness Month: Symptoms And Treatment Options

June is Cavernoma Awareness Month, which aims to widen the public understanding of this rare but potentially serious neurological condition. Here’s a look at what cavernoma is, what the symptoms are, and what the main cavernoma treatment options are.

What is a cavernoma?

A cavernoma (also known as a cavernous angioma or cerebral cavernous malformation) is a cluster of abnormal blood vessels in the brain or spinal cord. It is described as having the appearance of a raspberry, and can range in size from a few millimeters to several centimetres.

A cavernoma can increase in size, but it is not cancerous and cannot spread to other parts of the body. The blood vessels that make up the cavernoma have unusually thin walls, and they can be prone to small leaks, either inwardly or outwardly into the surrounding tissue.

Occasionally, a more severe haemorrhage may occur, which can cause serious complications or even be life threatening. Cavernomas most commonly occur in the brain, but it’s estimated that about five per cent occur in the spinal cord. They may also occasionally occur in the brainstem, which can be particularly risky.

What causes a cavernoma?

Most cavernomas occur spontaneously with no clear cause. However, some cavernomas run in families, and genetic testing may be carried out to determine if this is the case. Other risk factors include radiation therapy to the brain, particularly in childhood, and a history of brain hemorrhages.

It’s estimated that about one in every 600 people is affected by a cavernoma, but as they do not always cause symptoms, this figure may be higher. According to the NHS, the most common age for a cavernoma to occur is between 20 and 40.

What are the symptoms of cavernoma?

The type and severity of cavernoma symptoms will vary depending on the location in the brain. Sometimes they can be asymptomatic, but if symptoms are present they may include:

  • Haemorrhage
  • Seizure (fits)
  • Headaches
  • Vision or speech problems
  • Dizziness, tremor, or problems with coordination or balance
  • Weakness or numbness
  • Memory problems
  • Tiredness
  • Difficulty concentrating
  • Slurred speech or double vision

How is cavernoma diagnosed?

The main method for diagnosing cavernoma is via a magnetic resonance imaging (MRI) scan. Sometimes, the condition will be picked up if the patient is having a scan for another reason, because it does not always have noticeable symptoms.

What are the treatment options for cavanoma?

The treatment pathway for cavernoma will depend on the number, size, and  location, and the type and severity of the symptoms. Cavernomas do not always require active treatment, and instead the focus will be on managing or treating any symptoms. The patient will have regular MRI scans to monitor the cavernoma for any changes.

Medication

If the patient is experiencing headaches or seizures, these may be controlled with medication.

Surgery

If the patient is considered to be at risk of a haemorrhage, then neurosurgery may be recommended to remove the cavernoma. This is a major operation with a high risk of complications and side affects, so the potential benefits need to be carefully weighed up against the potential dangers.

Stereotactic radiosurgery

If neurosurgery is considered to be too difficult or dangerous, then stereotactic radiosurgery (SRS) may be considered. This is a relatively new method of treating cavernomas, but there is evidence to suggest that it is a safe and effective treatment that is less invasive than conventional surgery.

SRS involves delivering high doses of radiation to the site of the lesions to destroy the abnormal blood vessels, eliminating the risk of a future haemorrhage.  It may be an option for high-risk cavernomas that are deeply located in the brain, or near to critical nerves that would make neurosurgery too dangerous.

Gamma Knife surgery

Gamma Knife surgery is a form of SRS that doesn’t involve surgical incision, but delivers precisely focused radiation beams from multiple angles to the cavernoma. The individual beams are low intensity, but multiple beams converge at the target to enable a powerful dose of radiation that is usually delivered in a single session.

Patients experience minimal downtime, and can usually return to their normal activities within a few hours of treatment, requiring no overnight stay in hospital. Gamma Knife may be considered as a treatment option if multiple cavernomas are present, or if the lesion is in an area that is difficult to reach.

Outlook for cavernoma

Cavernoma is a lifelong condition, but with proper care and management, many people can live full and active lives.

Raising awareness of the symptoms and treatment options can help patients to access the best quality of advice, support and treatment. Get in touch with the Amethyst Radiotherapy team today to find out more.

Understanding The Link Between MS And Trigeminal Neuralgia

May 30 is World Multiple Sclerosis Day, which is a day to raise awareness and bring the global multiple sclerosis (MS) community together. MS is a condition that affects the brain and spinal cord, and can lead to a wide range of symptoms. One of the lesser-known symptoms of MS that can affect quality of life is trigeminal neuralgia (TN).

Here’s a more detailed look at these conditions, including the options for trigeminal neuralgia treatment.

What Is Multiple Sclerosis (MS)?

MS is an autoimmune condition that causes the body’s immune system to mistakenly attack the myelin sheath, which is the protective covering around the nerves in the central nervous system. This disrupts the flow of information within the brain and between the brain and the body, resulting in a range of symptoms.

What are the symptoms of MS?

MS can affect different parts of the central nervous system, so everyone’s experience of it will be different. The symptoms can wax and wane (Relapsing-remitting MS or RRMS) or get progressively worse over time. Some people move into this phase after the RRMS stage, or it begins as soon as the symptoms first begin to appear.

The most common symptoms include:

  • Fatigue – one of the most disabling symptoms, often not visible to others
  • Vision problems – blurred or double vision, or even temporary loss of vision
  • Muscle weakness and spasms – especially in the legs or arms
  • Balance and coordination issues – leading to unsteadiness or falls
  • Numbness or tingling – often starting in the face, arms, or legs
  • Bladder and bowel problems – urgency or difficulty emptying the bladder
  • Cognitive changes – such as memory issues or slowed thinking
  • Pain – including nerve pain, which is where trigeminal neuralgia can come in

What is trigeminal neuralgia?

Trigeminal neuralgia (TN) is a chronic pain condition that affects the trigeminal nerve, which carries sensation from the face to the brain. It is often described as a stabbing or burning sensation in one side of the face, and can occur in brief bursts that may repeat several times during an attack. Some people with TN experience continual pain.

According to the MS Society, TN affects about two to five per cent of people with MS at some point, and it can also affect people who do not have MS. The level of pain experienced with TN can be excruciating, and even when it recedes, patients experience a dull burning sensation in the affected area.

TN attacks can be unpredictable and intense, which makes it a very difficult and distressing condition to live with. The pain can be triggered by regular activities such as eating, talking or any physical contact with the face. It can sometimes be mistaken for dental pain, so instances of TN may be underdiagnosed in the general population.

What causes TN?

In cases where TN is related to MS, it is caused by nerve damage around the trigeminal nerve root. There is a trigeminal nerve path on each side of the face, with three main branches. The exact location of the face pain will depend on which trigeminal branch or branches are affected.

In cases where TN occurs in people without MS, it’s most often caused by a blood vessel pressing on the nerve inside the skull.

What are the treatment options for TN?

The first line of treatment for TN is usually prescription painkillers (regular painkillers such as paracetamol and ibuprofen are ineffective for treating nerve pain). If drug treatment is ineffective, then surgical options might be considered. In this case, the patient will be referred to a neurosurgeon who will determine the best treatment pathway.

Stereotactic radiosurgery

One treatment option that might be considered is stereotactic radiosurgery (SRS). One of the most highly regarded forms of SRS is Gamma Knife surgery. This is a non-invasive procedure that uses highly focused beams of radiation to target the trigeminal nerve root, disrupting the pain signals.

Gamma Knife has a high success rate and a lower risk of side effects than many other forms of surgery, making it the preferred option for leading neurosurgeons. It is usually delivered in a single session, and involves minimal recovery time.

If you or a loved one is experiencing facial pain with MS or has a diagnosis of TN and you are interested in finding out more about Gamma Knife treatment, please talk to our team today.

Amethyst To Host Webinar On Vestibular Schwannoma Management

Amethyst Radiotherapy is pleased to host a live webinar on 5 June on the topic of Modern Management of Vestibular Schwannoma. The discussion will address the current management of small and medium-sized vestibular schwannomas (VS), and will also explore the emerging role of AI and technology in future methods of VS care.

The webinar will be led by two members of our expert medical team, including Mr Patrick Grover and Mr Matthias Radatz.

Mr Grover is a Consultant Skull Base and Vascular Neurosurgeon, with expertise in skull base tumors and vascular conditions, serving as the Cranial Neurosurgery Lead at the National Hospital in London, and recognised for his work in research and advanced surgical techniques.

Mr Radatz is a Consultant Neurosurgeon at Sheffield Teaching NHS Hospital and Medical Director of Thornbury Radiosurgery Centre, and a leading practitioner of Gamma Knife in stereotactic neurosurgery, treating cranial and extra-cranial CNS lesions.

Here’s an overview of vestibular schwannoma treatment, and the topics that will be discussed on the day.

Understanding vestibular schwannomas

Vestibular schwannoma (VS) are also known as acoustic neuroma. They are a fairly rare and usually non-cancerous type of tumour that grows on the vestibular nerve, which connects the inner ear to the brain. This nerve controls hearing and balance, and the main nerve that controls facial movement runs close to it.

Typically, a VS only affects the hearing and balance nerve on one side of the head. However, if the patient has a rare genetic condition called NF2-related schwannomatosis, it can affect both sides. Although VS is a benign tumour and does not spread to other parts of the brain, it can cause serious problems if it grows and puts pressure on the brain.

What are the symptoms of VS?

A VS is typically slow growing, so it can be present for years before any symptoms emerge. These may include loss of hearing in the affected ear; tinnitus (a persistent ringing or buzzing noise in the ear), and dizziness or vertigo.

The NHS explains that a larger VS may also cause persistent headaches, numbness, pain or weakness on one side of the face; difficulties with limb coordination, temporary blurred vision, voice changes or difficulty swallowing.

What is the modern treatment pathway for VS?

There is no fixed treatment pathway for VS, because the best approach depends on variables including:

  • Tumour size and growth rate
  • Patient age and general health
  • Presence of symptoms (like hearing loss, vertigo, or facial numbness)
  • Patient preferences

The watchful waiting approach

If the VS is small and slow-growing, it may be actively monitored with regular scans for signs of growth or other issues, rather than directly treated. This is sometimes referred to as the ‘watchful waiting’ approach.

Surgical removal

Larger or fast growing tumours, or those that are causing serious side effects, may need to be removed with open surgery. However, this is a major procedure with a risk of complications such as damage to the facial nerves or permanent hearing loss.

Stereotactic radiotherapy or radiosurgery

Stereotactic radiotherapy (SRT) or stereotactic radiosurgery (SRS) are the most common treatment pathways for smaller cases of VS. SRT refers to a course of multiple radiotherapy sessions carried out over a number of weeks. SRS typically refers to a single treatment session, and is often used in the case of smaller tumours.

Gamma Knife surgery

One of the most advanced types of SRS is Gamma Knife surgery. Despite the name, it does not involve any physical incisions into the brain. Instead, it delivers highly focused beams of radiation directed from multiple angles to target the tumour site.

Individually, the beams are too weak to cause any damage as they pass through the brain tissue to the tumour, but collectively the radiation intersects at the location of the tumour, causing the cells to die.

It’s up to 95 per cent effective at slowing or preventing further growth of the tumour, and has minimal downtime. It also has a lower risk of complications compared to conventional surgery.

How AI and emerging technology are shaping the future of VS care

Emerging technologies are making considerable advancements in the way that VS are diagnosed and treated. For example, machine learning algorithms can be used to analyse MRI scans more accurately and quickly than the human eye.

This reduces the margin of error and detects tiny details that would otherwise not be picked up, and speeds up the treatment pathway. Predictive tools can also be used to identify probable future growth patterns of tumours, leading to more accurate and personalised treatment plans for patients.

The Role Of A Clinical Nurse Specialist In Brain Tumour Care

12 May is International Nurses Day, which recognises the tremendous dedication and professionalism that nurses bring to the healthcare sector. Nurses are highly skilled and also a great source of compassion and strength for patients who are going through difficult times.

Here’s a look at the specific role of clinical nurse specialists (CNSs) in a multidisciplinary team (MDT) for brain tumour treatment.

Who Are Clinical Nurse Specialists?

CNSs, (sometimes also referred to as a neuro-oncology nurse) are key members of the MDT who have specialist expertise in treating people with brain tumours. They act as the first point of contact between you, your family and the rest of the MDT team, and will be able to deal with any queries you may have during your treatment and recovery process.

You will be introduced to your CNS shortly after your diagnosis, and they will be a consistent presence throughout your care journey. Here are some of the issues they can provide help and support for.

Explaining complex medical information

The early days after a diagnosis can be a particularly tough time for patients and families. The shock and distress of having a serious health problem can make it more difficult to absorb complex medical information. The side effects of the brain tumour itself may also make it more challenging for you to communicate or organise your thought processes.

The CNS will be on hand to explain any medical terminology in plain language and help you clarify any written materials that you find hard to understand. They can also provide you with practical advice about medications, nutrition, and managing side effects such as fatigue.

They can also explain to you the current research that is being carried out into brain tumours, so you can better understand the most suitable treatment option for you, and why your MDT team has recommended it. For example, you may have the opportunity to take part in clinical trials to access emerging treatments.

Referring you to other relevant services

If necessary, your CNS will refer you to other relevant specialist services to aid with the management of your symptoms and side effects. For example, they can refer you to a counsellor or psychologist if you are having emotional or mental health difficulties, or a pain or seizure management service.

The CNS will also be able to advise you about practical issues such as claiming benefits and financial support if you are unable to work, or a family member needs to take time off work to care for you. They may offer you a Holistic Needs Assessment (HNA), which is designed to identify any practical, financial or emotional concerns you may have.

Coordinate your appointments and review your progress

The CNS will refer you to the relevant department, such as A&E or your GP, if you have a pressing healthcare concern that does not appear to be related to your brain tumour or treatment. They will also liaise with health professionals on your behalf if they feel you need extra appointments or a review of your current progress.

Your CNS will also visit you in clinics or on the ward whenever possible, and will provide a source of emotional support as well as discuss any concerns or questions you may have. This can help patients to feel seen and heard, and provides a sense of consistency that brings a sense of reassurance and control at a difficult time.

Support for families and carers

A CNS will also offer support to families and carers, helping them to understand the treatment process, explaining how to provide care at home, answering questions and advising about how to access benefits, counselling or respite care services.

Even after the treatment process is over, the CNS will remain as a point of contact to monitor your progress and provide continuing advice about managing any long-term side effects or rehabilitation.

CNS: A vital role

The role of a CNS is key to the overall quality of care that a brain tumour patient will receive. This is especially crucial for people who are facing neurological changes, and may find that tasks and activities that were previously easy are more challenging.

It can be a very overwhelming experience for both patients and families, and the CNS will be there to provide expert, professional and compassionate advice at every step.

If you would like some information about Gamma Knife radiosurgery, please visit our website today.

What Is Trigeminal Neuralgia And How Can It Be Treated?

Experiencing a sudden onset of facial pain can be very challenging, which is why it is important that anyone who has an inexplicable onset of shooting pain on one side of their face seeks medical help immediately.

While there could be several explanations for these symptoms, one of the main reasons behind these painful attacks is trigeminal neuralgia.

Read on to find out more about what this condition is and how it can be treated.

What is trigeminal neuralgia?

Trigeminal neuralgia causes intense pain on one side of the face that feels similar to an electric shock.

It affects the trigeminal nerve, which goes from near the top of the ear and splits into three, with the nerves going towards the cheek, eye and jaw. This nerve is used to carry signals from the face to the brain.

Everybody has a trigeminal nerve on both sides of their face, but the condition typically only affects patients on one side. Sometimes, patients can experience it on both sides, but this is rare.

The attacks are often short, lasting from between a few seconds to a couple of minutes. They seem to come from nowhere and start and stop suddenly.

Those who suffer from trigeminal neuralgia can experience regular attacks of pain and, in severe cases, patients can have hundreds of incidences of pain every day. However, it is more common to feel the nerve every few days.

Some patients might find they go into remission for a bit, with the pain disappearing for months or even years. However, it does return and the periods of being pain-free might become shorter as time goes on.

What’s more, trigeminal neuralgia tends to worsen, so sufferers will typically experience longer periods of pain.

What is the cause of trigeminal neuralgia?

Trigeminal neuralgia is caused when a blood vessel puts pressure on the nerve. This is typically the superior cerebellar artery pushing on the trigeminal nerve root.

When the nerve is compressed, it affects sensations of pain from the jaw, teeth, mouth and eyes to the brain.

This is the usual cause of trigeminal neuralgia, with 85 per cent of cases caused by this.

However, trigeminal neuralgia can also be the result of having another condition, such as multiple sclerosis, arteriovenous malformation, or tumours pressing against the nerve.

Secondary trigeminal neuralgia occurs in 15 per cent of cases, and these patients often experience pain on both sides of their face, as opposed to just one. They also tend to be younger.

Any injury to the nerve can also trigger the chronic pain condition, so those who have had a stroke or facial trauma are more at risk.

Who is likely to be affected by trigeminal neuralgia?

Trigeminal neuralgia is more likely to affect women than men, and those older than 50. Hypertension is also thought to be a risk factor.

Cases under the age of 40 are far and few between, and it is very rare for children to be affected by it.

What can trigger a trigeminal neuralgia attack?

It is thought that lightly touching your face can trigger a trigeminal neuralgia attack, from washing your face to shaving.

Even putting on make-up, talking, smiling, brushing teeth, eating or drinking can lead to an onset, which makes an attack very difficult for sufferers to avoid.

A light breeze that blows over your face or air conditioning could also set off the pain, making it a life-altering condition as patients never know when an attack will occur.

Treatments for trigeminal neuralgia

The good news is that there are treatments for trigeminal neuralgia, including medications, nerve blocks, and different surgeries.

These range from rhizotomy, which involves damaging the root of the nerve and results in some facial sensory loss, to microvascular decompression, which relieves pressure from the blood vessels but is invasive.

A popular alternative to both of these is stereotactic radiosurgery. This involves targeting a beam of radiation at the root of the trigeminal nerve, so it blocks pain signals to the brain.

This is a noninvasive procedure that does not involve incisions or general anaesthetic, and typically provides pain relief for up to a few years.

The Gamma Knife treatment typically takes around 45 minutes, no recovery time is needed, and side effects are minimal.

If you have trigeminal neuralgia and want to discuss Gamma Knife stereotactic radiosurgery to treat the condition, get in touch today.

Coping With A Brain Tumour Diagnosis: Tips For Patients

When you or someone you love has been diagnosed with a brain tumour, it’s naturally a time of uncertainty and fears about the future. This can be emotionally draining, at a time when you also need to think about practical issues such as arranging finances, speaking to employers about time off for treatment, working out caring duties, and so on.

However, there is no need to face all these issues alone: there are support systems in place to help you cope, and many people who have been there before you are willing to share their insights. Charities such as Cancer Research UK have their own online forums, support groups and resources to help people navigate the challenges of a cancer diagnosis.

As a private radiotherapy centre in the UK, we are taking the opportunity to share some tips and practical advice on coping with a brain tumour diagnosis, as we approach Mental Health Awareness Week (12-18 May).

Acknowledge your feelings

Everyone will find their response to a diagnosis is different, from shock or sadness to numbness or anger. Allow yourself time to process and connect with your emotions, however uncomfortable they may feel. This will help you to put your fears into perspective and talk more honestly with family and friends or healthcare professionals about what you are feeling.

Over time, this will boost your own mental health, and enable you to develop stronger relationships with others. You may also find the process of navigating treatment and recovery easier if you are more in touch with your emotions.

Focus on what you can control

It’s normal to feel overwhelmed and anxious when you are faced with the uncertainties that lie ahead. However, there are certain things you can control, and taking practical steps to put these into practice can help you to manage your emotions.

For example, certain lifestyle changes such as eating a balanced diet, increasing your level of physical fitness, and exploring the available resources and support networks can help you to focus and feel more in control. This will also make dealing with the treatment and any potential side effects easier.

Set small achievable goals that are not related to your cancer treatment, such as walking a mile every day or at the weekend, or trying out a new recipe a couple of times a week.

Dealing with employment

A brain tumour diagnosis is life-changing, and if you are employed, it is likely that you will need to take time off work for treatment and recovery, or even stop working altogether. If you do decide to continue working, you may find that the tumour or the side effects of treatment affect your ability to do your job.

For example, some types of brain tumour can cause cognitive difficulties such as memory loss or confusion, speech and language problems, personality changes, or fatigue. If your partner or a family member needs to act as your carer, their job might also be affected.

You are not legally obliged to tell your employer about your brain tumour diagnosis, and some people may worry that it might result in unfair treatment at work. However, your rights as an employee are legally protected and your employer should make reasonable adjustments, including allowing you to have time off for appointments and treatment.

Dealing with finances

A brain tumour diagnosis can impact your finances, and this can be an additional source of stress and anxiety at a time when you are already dealing with powerful emotions and a lot of disruption. Your ability to earn might be reduced, or even stop altogether. If this is the case, take action early to find out what benefits and other financial support you can access.

Planning a budget can help you gain a sense of control over your finances, because you will be able to see at a glance how much money you have coming in and what your outgoings are. The Brain Tumour Charity has a useful section on managing your finances, and you can also access help from organisations such as the Citizen’s Advice Bureau.

Coping with changes after treatment

After your treatment, you may have short or long-term side effects that change your life in some way. These will be unique to you and the type of tumour and treatment you have received, and your healthcare team will still be available to help you with any queries and concerns you may have.

Remember that you are not alone, and there are many support services available to help you navigate emotional, physical or practical difficulties of living with a brain tumour.

Amethyst UK Proud To Sponsor #Miles4Radiotherapy Challenge

Each year, cancer charity Radiotherapy UK organises its #Miles4Radiotherapy summer challenge, where anyone affected by the disease can either get a team of people together or participate individually, clocking up sponsored mileage either by walking, running, sailing, wheeling, scooting, boxing, horse-riding… anything goes!

And the Amethyst Radiotherapy UK team are pleased to announce that they are now official sponsors of the 2025 event, which is due to start on July 1st and will be running for two months.

This year, the aim is to bring the radiotherapy community together to complete 160,000 miles over the two-month period, with every mile representing a treatment course delivered in the UK and the thousands of cancer patients seeking out the empowering information they need to help them navigate their cancer journey.

Given that one in two of us will get cancer at some point in our lives and that one in four of us will need to have radiotherapy treatment, this seems like a particularly good endeavour to support.

Those who sign up to the challenge will receive a welcome pack and associated merchandise, as well as exclusive access to the Race At Your Pace app.

The hope is that campaigns such as this will help raise awareness, show solidarity to those with the disease and fundraise successfully to create more trusted PIF TICK-accredited radiotherapy information for every cancer patient who needs it.

CEO of Amethyst Radiotherapy Sasha Burns said: “We’re proud to support the Miles4Radiotherapy campaign. Radiotherapy is vital to cancer care, yet access remains uneven across the UK. This initiative by Radiotherapy UK highlights the need for change and we’re committed to helping more patients get the treatment they deserve.”Director of Radiotherapy UK Sarah Quinlan made further comments, celebrating the close connection the charity has with Amethyst, having worked together in 2023 to create patient videos about Gamma Knife treatment for brain tumours.

She went on to add: “Those videos have now been viewed many thousands of times, showing there is so much we can do to help patients as they go through cancer treatment. The right information, made accessible, can help reduce anxiety and support people to feel empowered once more.”

Amethyst itself delivers stereotactic radiosurgery on behalf of the University College London Hospital and the NHS Trust at the National Hospital for Neurology and Neurosurgery, the oldest standalone neurosciences hospital. 

If you’d like to find out more about treatment options, get in touch with the team today.

Potential Signs Of A Brain Tumour That You Shouldn’t Ignore

Brain tumours are thankfully rare, but there are many different types of tumour and therefore the  signs and symptoms can be very varied. The early signs can easily be missed, or misdiagnosed as another condition. Sometimes, the symptoms may be very subtle or there may even be no symptoms at all.

However, early detection will lead to the most effective brain tumour treatment pathway, and result in the best patient outcome. Therefore, it’s important to recognise potential warning signs, and always seek medical advice if you have any concerns.

Here’s a look at some of the most common brain tumour symptoms, and when to consult a doctor. As we have mentioned, these symptoms can be varied depending on the type, size and location of the brain tumour. They can also be sudden and intense, or subtle and develop gradually over time.

Persistent headaches

Almost everyone gets headaches sometimes, and they can have numerous causes. Most of the time, a headache won’t be caused by a tumour. Common causes include stress, migraines, dehydration, infections, hangovers, eye strain or bad posture.

However, according to the Brain Tumour Charity, about 60 per cent of people living with a brain tumour do experience headaches at some stage, which are caused by a build up of pressure on the nerves and blood vessels within the brain.

Potential signs to look out for:

  • If your headaches feel different to usual, such as a dull or throbbing ache that gets worse over time, or occurs intermittently
  • If your headaches are worse first thing in the morning or whenever you wake from sleep, and recede when you assume an upright position
  • If your headaches do not respond to conventional painkillers that were previously effective, such as paracetamol or ibuprofen
  • If your headaches are triggered or worsened by coughing, bending, shouting or straining
  • If your headaches are accompanied by other symptoms, such as vomiting, seizures, muscle weakness, vision disturbance, or cognitive changes

Vision changes

If the tumour is pressing on an optic nerve or causing a swelling of the optic nerve in the back of the eye, it may lead to changes in vision. This may include:

  • Blurred or double vision
  • Episodes of sudden vision loss, often after standing up
  • Losing part of the field of your vision, such as peripheral vision

If you have any concerns about your vision, book an appointment with an optician for an eyesight test, or see your doctor.

Seizures

Seizures (commonly referred to as fits) are one of the most common first symptoms of a brain tumour in adults. All incidents of seizure should be reported to a doctor, as they can have several potentially serious causes. However, it does not necessarily mean that there is a problem.

Seizures can be relatively minor, such as a temporary jerking of the limbs, or involve convulsions and loss of consciousness. A seizure that is related to a brain tumour is more likely to cause moments of confusion, visual disturbances, or hallucinations than a full loss of consciousness.

Nausea and vomiting

A brain tumour can cause persistent feelings of nausea or vomiting, which are often accompanied by dizziness. It’s important to remember that these are usually not a sign of a tumour and can be caused by many different reasons, including: food poisoning, gastrointestinal viruses, pregnancy, and over indulgence in food or alcohol.

Nausea on its own is more likely to be caused by one of the above reasons. However, if it’s worse in the mornings and improves during the day, it gets worse if you suddenly change position, have persisted for over a week with no other obvious explanation, or are accompanied by other potential brain tumour symptoms, seek medical advice.

Persistent tiredness

Tiredness and fatigue can affect anyone, and they do not affect all brain tumour patients. The fatigue could be mild, such as sometimes feeling sluggish and slow, or almost totally debilitating, preventing an individual from carrying out their usual duties.

The fatigue might manifest as poor concentration; sleeping too much or trouble getting to sleep or staying asleep; aching muscles; anxiety and depression; feeling an exhaustion that is disproportionate to the activity carried out; lack of motivation; and a loss of interest in activities that were previously enjoyed.

When to see a doctor

The above are not a comprehensive list of potential brain tumour symptoms, and in most cases they won’t lead to a positive diagnosis of a tumour. However, if you are experiencing multiple symptoms, or symptoms that don’t improve after a few weeks and have no obvious explanation, then you should get checked out by a doctor.

If you would like to find out more about radiotherapy brain tumour treatment options, please visit our website.