12 May is International Nurses Day, which recognises the tremendous dedication and professionalism that nurses bring to the healthcare sector. Nurses are highly skilled and also a great source of compassion and strength for patients who are going through difficult times.
Here’s a look at the specific role of clinical nurse specialists (CNSs) in a multidisciplinary team (MDT) for brain tumour treatment.
Who Are Clinical Nurse Specialists?
CNSs, (sometimes also referred to as a neuro-oncology nurse) are key members of the MDT who have specialist expertise in treating people with brain tumours. They act as the first point of contact between you, your family and the rest of the MDT team, and will be able to deal with any queries you may have during your treatment and recovery process.
You will be introduced to your CNS shortly after your diagnosis, and they will be a consistent presence throughout your care journey. Here are some of the issues they can provide help and support for.
Explaining complex medical information
The early days after a diagnosis can be a particularly tough time for patients and families. The shock and distress of having a serious health problem can make it more difficult to absorb complex medical information. The side effects of the brain tumour itself may also make it more challenging for you to communicate or organise your thought processes.
The CNS will be on hand to explain any medical terminology in plain language and help you clarify any written materials that you find hard to understand. They can also provide you with practical advice about medications, nutrition, and managing side effects such as fatigue.
They can also explain to you the current research that is being carried out into brain tumours, so you can better understand the most suitable treatment option for you, and why your MDT team has recommended it. For example, you may have the opportunity to take part in clinical trials to access emerging treatments.
Referring you to other relevant services
If necessary, your CNS will refer you to other relevant specialist services to aid with the management of your symptoms and side effects. For example, they can refer you to a counsellor or psychologist if you are having emotional or mental health difficulties, or a pain or seizure management service.
The CNS will also be able to advise you about practical issues such as claiming benefits and financial support if you are unable to work, or a family member needs to take time off work to care for you. They may offer you a Holistic Needs Assessment (HNA), which is designed to identify any practical, financial or emotional concerns you may have.
Coordinate your appointments and review your progress
The CNS will refer you to the relevant department, such as A&E or your GP, if you have a pressing healthcare concern that does not appear to be related to your brain tumour or treatment. They will also liaise with health professionals on your behalf if they feel you need extra appointments or a review of your current progress.
Your CNS will also visit you in clinics or on the ward whenever possible, and will provide a source of emotional support as well as discuss any concerns or questions you may have. This can help patients to feel seen and heard, and provides a sense of consistency that brings a sense of reassurance and control at a difficult time.
Support for families and carers
A CNS will also offer support to families and carers, helping them to understand the treatment process, explaining how to provide care at home, answering questions and advising about how to access benefits, counselling or respite care services.
Even after the treatment process is over, the CNS will remain as a point of contact to monitor your progress and provide continuing advice about managing any long-term side effects or rehabilitation.
CNS: A vital role
The role of a CNS is key to the overall quality of care that a brain tumour patient will receive. This is especially crucial for people who are facing neurological changes, and may find that tasks and activities that were previously easy are more challenging.
It can be a very overwhelming experience for both patients and families, and the CNS will be there to provide expert, professional and compassionate advice at every step.
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